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Céline Dion Opens Up About Stiff-Person Syndrome and Performing Again
Somewhere in the bowels of Palms Casino Resort, just off the Las Vegas Strip, is a recording studio that has seen countless victories. Michael Jackson recorded tracks for the reissue of his seminal Thriller album here; Lady Gaga recorded Harlequin, the first compelling concept album tied to a Hollywood film in years. One evening in June, though, something even more extraordinary is happening: Céline Dion is doing Pilates. She stands with her leg up on a ballet barre, wearing a nude leotard with a lace-trimmed high neck. The singer is lithe and poised, her hair in a perfect bun, mascara coating her lashes. With ease, she slides her leg along the barre, stretching into a wide split.
This victory is hard-won: In 2022, Dion was diagnosed with stiff-person syndrome, an extremely rare autoimmune neurological disorder that can cause muscle stiffness tantamount to paralysis. At times, Dion was in such debilitating pain that she could barely walk. Some days, she’d have to take a high dose of Valium simply to function. “It is a progressive condition. I don’t like to say ‘disease.’ Disease makes you go like this,” she says, scrunching her nose: “ ‘Kevin, you’re such a disease.’ ” Though she has the bearing of royalty, Dion has the personality of a Muppet, never leaving much time between cracking a joke or Tetris-ing her body into another position. (Because SPS can freeze her muscles into place, she likes to keep moving.)
In some ways, stiff-person syndrome was a cruel twist of fate. That Dion, the youngest of 14 children from a poor family (one bath a week!) in a small-town suburb of Montreal, would become one of the best-selling singers of all time, an icon to the gays/all of Canada (but Quebec especially)/lovers of heartbreak/West Indians/movie-soundtrack aficionados, inspiring a fervor strong enough to make gods jealous, felt like a one-in-a-million chance, a miracle. That stiff-person syndrome is believed to affect only one or two people per million proves that luck goes both ways.
The room is tricked out with weights, a treadmill, and a reformer machine in addition to the ballet barre. I am encouraged to take a seat next to the piano. Her trainer, Naomi, tells her she’s getting more flexible, which makes Dion slightly panic: “Too flexible?” (Thankfully, no.) Dion has performed only once in the past six years—at the Paris Olympics—and has been itching to return to the stage.
It’s not just that performing has been her life since she was 12. Having to disappoint her fans—canceling shows at the last minute with no firm explanation before suspending an entire tour in 2023—made her feel insane, unreliable, and rudderless. What’s worse is that she felt like she’d lied to her fans. She had experienced symptoms for 17 years before receiving a formal diagnosis in 2022; before then, she’d cancel a show citing a sinus infection or cough when, in reality, the kinds of health challenges she was confronting were far more profound. In the 2024 documentary I Am: Céline
Dion, viewers saw what she had been living with: the pain punching holes in her voice; the handfuls of benzos she needed to take to get through the day; an SPS episode that left her stricken and crying, unable to move or communicate.
Dion talks about performing as if it is her earthly duty, a covenant between herself and her divine talent. That she has regained control of her body and its ability—and was able to announce, as she did earlier this year, a five-week residency in Paris, beginning in mid-September—is tantamount to a miracle.
After Pilates wraps up, Dion sits with me, covered in a thin monogrammed sweater and dusty-rose track pants. A humidifier near her is set to precisely 23 degrees Celsius. John, her co-manager, shows her a photo of her sons at the Stanley Cup Finals. (Does she like hockey? “No, I love my kids. That’s different.”)
Now that Dion can finally perform again, it is as if her life, a lost item, has been returned to her. She announced the news in an Instagram post in March, calling it a 58th-birthday present to herself: “This year, I’m getting the best birthday gift of my life. I’m getting the chance to see you, to perform for you.” She said she was feeling strong, excited, and a little nervous but ready to come back. Tickets sold so quickly that she has already started selling dates for a three-week residency in May 2027. “It’s
been so long, I would like to offer them something to show how I’ve missed them,” Dion says.
Annie Horth, her head of wardrobe and creative adviser, promises something “grandiose,” a show that will use broad architectural strokes to reveal the diva’s many dimensions. “She goes from intimate and romantic to a vocal powerhouse, so we are creating something where she navigates that,” Horth says.
Dion’s as-yet-undiagnosed symptoms began to flare up in 2020, coinciding with the onset of the pandemic. She continued isolating for three more years, in part because she didn’t want fans to see her and assume that she was having a full, happy life but still canceling on them. During this time, she fell in love with nature. “I love trees so much, and I had this vision of myself trying to disappear through the leaves,” she says. But it was fall, and the leaves fell, so everyone could see her, their baskets in hand. She couldn’t produce the apples they’d always come to her for. “I was trying to tell them, I’m sorry, I don’t have any apples to give you anymore.” Then she heard a voice: “But we did not come for the apples; we came for the tree.”
To Dion, this is a true revelation. But this is who she’s always been, earnest and strange, in a way that allows people to access their emotions. She is so deeply herself that it’s contagious.
Dion has been maligned for making corny “no-brow” music since she was an adolescent. From the late ’90s into the aughts, Dion’s name became shorthand for schlock and too-muchness. But there’s something about her—besides the voice—that perseveres, keeps her part of the cultural conversation. What some see as corny, others see as earnestness so powerful that it can withstand the shifting waves of cool. Being born a poor, French-speaking Quebecois made her an outsider in her own country. And yet she’s managed to unite people through her love for love. For years, Dion’s music has been a place for catharsis, for releasing emotion without caring about how it makes you look.
As a child in Quebec, Dion dreamed of being a gymnast after seeing Nadia Comaneci earn perfect scores at the 1976 Olympics. “She was the idol of every girl my age,” she exclaims, eyes wide, still as awed as the day it happened. “They didn’t even have space on their freaking board because she had a perfect 10 and they didn’t know how to write one!” Other talents presented themselves, and then she became too tall, so she woke herself up from that dream. But she made three goals for herself, the first of which she jumps out of her chair to illustrate: “I wanted to sit straight, and I could not. I basically sat like this.” She hunches her back briefly, then ambles back into the chair, settling with her legs crossed. The others were to have the ability to touch her toes and to do splits. Now she can do all three.
Dion’s entire body is pliable, especially her face, which is an instrument she uses nearly as deftly as her voice. Depending on the emotion, her upper lip will recede back to her nose or jut out like she’s trying to touch someone with it. Her eyebrows are always on the move. To say that she is prone to breaking out into song is to say something like “Las Vegas can be warm”—a dramatic minimization. Dion sings as punctuation, intensifier, transition, evidence of joy; over two hours, she sings everything from “That’s Not My Name,” the electro-pop handclapper by the Ting Tings, to “Here Comes the Bride” because someone comes into the room carrying white flowers, to Cyndi Lauper’s “True Colors” because honesty is a virtue, to “Ce n’était qu’un rêve,” her first single, which her mother wrote for her. It’s why, in addition to being known as one of the finest singers of her generation, she’s also made her mark as a meme queen, her off-the-cuff moments endlessly clipped around the internet. While in the middle of telling me about her love for climbing trees—“I’m a monkey”—she scampers four feet up the scaffolding on the wall, extending her arm out to me, like God did to Adam.
It was uncomfortable to put her interior life on display in the documentary, but then again, the reason she’s had this unbelievable life in the first place is her fans. They deserved answers; in many ways, the only reason she got answers—a diagnosis after almost two decades of symptoms—was that she had the status afforded to her by her fans. “They paid for tickets,” she says. “They bought my records. They gave me that luxury. So the least I can do is tell them that I’m alive.”
After her diagnosis, Dion committed to intense rehabilitation: new meds, physical therapy, vocal therapy, immunotherapy. There are no FDA-approved treatments for the condition, so in 2024 her foundation donated $2 million for research into autoimmune neurological disorders. In preparation for the Paris shows, Dion is doing 90-minute Pilates sessions three times a week; on two other days, she takes ballet classes with a local company. She describes this period as falling and getting back up repeatedly. She is proud of herself for achieving something that her body wasn’t “born to do.” And best of all, she’s done hiding inside and is reemerging into public life. Now that she is better, she returns back to work, even the annoying parts. But she recognizes that her relationship with her fans goes both ways. “Well, girl,” she says, talking to me but addressing herself, “if you don’t want to sign autographs and you don’t want to get yourself pretty and you don’t want to be disturbed because your pasta is going to get cold, you can always stay home. But look at what you have.”
Singing was one of the Dion family businesses. Operating her father’s piano bar in Charlemagne, Canada, about 40 minutes from Montreal, was another. The entire family ran the place; her brothers played piano, her sisters sang, and her mother cooked French fries, “peeling the potatoes in the buckets of cold water,” Dion says, pantomiming everyone’s routines. Occasionally, young Dion would be allowed to sing one or two songs before her mother shooed her back home. Eventually, people started to call the bar to ask if the little girl would be singing that night. “Ten years old and I’m in a bar. I could’ve been arrested,” she says. “But you know what? The police officers joined and sang with us.” She smiles. “There was not a lot of crime then.”
Her life changed when she met the music producer René Angélil, who became her manager starting from age 12. They began dating when Dion was 19, and their lavish 1994 wedding at the Notre-Dame Basilica of Montréal, when Dion was 26 and Angélil was 52, was broadcast on television. Their 26-year age difference understandably ruffled feathers, but the pair remained happily married until Angélil died of throat cancer in 2016.
Dion released her first single at 13, which made her a Quebecois celebrity, representing French-speaking Canada on a national stage. After winning Eurovision for Switzerland in 1988 when she was 20 (because the competition doesn’t have a citizenship requirement, countries can recruit noncitizens), she began recording music in English and released her first English-language album, Unison, in 1990, cementing her crossover appeal. She has always maintained, though, her allegiance to the French language, and she speaks to her three children in only French, letting them learn English and Spanish in school.
We all know what happened next: the number-one hits, the best-selling albums, the Grammys, the world tours. Dion became a colossus of pop music, an acknowledged diva up there with Aretha Franklin and Whitney Houston, inspiring the next generation of belters. The Australian singer-songwriter Sia recalls watching one of Dion’s concert films as a teenager where Dion evoked the sound of every instrument on stage with her: “At one point, she mimicked the bass solo, and then she mimicked the flute solo, and then she mimicked the guitar solo, and she mimicked the drums,” says Sia. “That was one of the moments that made me want to be a singer.”
“My love for ballads is definitely a direct pass down from her,” says Adele. “She’s dramatic, and I love being a drama queen.” One night during Adele’s Las Vegas residency, she spotted Dion in the audience and burst into tears, leaving the stage to embrace her. That Adele could have such a residency is also Dion’s legacy: Her 2003–2007 “A New Day …” show redefined the Las Vegas musical residency. It was no longer the last resort for fading stars but rather an opportunity for record-busting extravaganzas. “A New Day…” is still the highest-grossing residency of all time.
If Dion’s life has been marked by extreme highs, there have also been profound lows. In 2016, she lost one of her brothers and her husband within two days of each other. In 2003, the day she found out her father had died, she still performed that night. There was no better way for her to work out her feelings than to dive directly into them, held by the same people who had kept her afloat for decades.
She kept insisting on finding personal strength on stage and through her fans, so I ask: What is it about you that makes them love you so much? She tuts while she thinks. “It’s got to be because I’m an open book,” she says. As if on cue, the lights flicker. She has to be this way, she explains; if she kept everything to herself, she couldn’t be herself. She couldn’t live her life. “I’m honest, and it’s not always pretty,” she says. “Sometimes it’s happy things, sometimes it’s sad, but it’s called life.” No one knows this more than her. “Instead of questioning life, can you live life? So I’m living my
life, girl. I’m living the life.”
This story appears in the September issue of
.
Hair: Shay Ashual; makeup: Lauren Parsons; production: Casa
Projects. Special thanks to Caesars Palace Las Vegas.
Meet the 2026 Icons
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ESPN founder Bill Rasmussen dies at 93

(Photo by Rich Arden / ESPN Images)
William F. Rasmussen, the sports fan-turned broadcaster and entrepreneur whose out-of-the-box idea of a 24-hour cable sports network, ESPN, changed forever the landscape of sports media, passed away today, August 18, 2026, at the age of 93 from the effects of Parkinson’s Disease.
“Bill was a remarkable man – a visionary and an innovator who conceived the idea of a network entirely devoted to sports,” said ESPN Chairman Jimmy Pitaro. “Quite simply, none of us would be here today if it wasn’t for Bill’s passion and all the hard work and entrepreneurial spirit he put into building ESPN in the late 1970s – key aspects of our company culture that still carry on to this day.”
Pitaro added: “One of my greatest thrills since joining ESPN was getting to know Bill on a personal level. I will always cherish the memory of catching the ceremonial first pitch that he threw at Fenway Park in Boston in celebration of our 40th anniversary. His legacy will always be a part of ESPN.”

(Photo by Joe Faraoni / ESPN Images)
Rasmussen was predeceased by his wife of 56 years, Lois, in 2011 and is survived by two sons – Scott Rasmussen and his wife Laura and Glenn Rasmussen – his daughter Lynn Van Hollebeke and her husband Louie, seven grandchildren, Andy, P.J., Wil, MaryAnn, Donna, Jessica and Sarah, one great grandson, Otto, and one great granddaughter, Adelaide. In addition to his wife, Bill was predeceased by his brothers Robert and Donald Rasmussen, sister Vivien and grandson Justin Van Hollebeke.
The Birth of ESPN
In 1978, Rasmussen, a former sports broadcaster and public relations executive, and his son Scott started investigating the just-emerging technology of satellite delivery of television. On a Friday afternoon in August 1978, Rasmussen and Scott were stuck in traffic on Connecticut’s Interstate 84 while travelling to the New Jersey shore. They were discussing possible programming for their newly acquired satellite transponder from RCA. On a lark, Rasmussen blurted out the idea to create a network devoted only to sports. Sports fans both, father and son instantly thought they had a great idea.

In time, their idea grew from a service showing Connecticut sports to state residents to a 24-hour national sports network. Bolstered by financial backing from the Getty Oil Co., a contract for programming with the NCAA and an advertising agreement with Anheuser-Busch – then the largest sponsorship deal in cable history – the Entertainment and Sports Programming Network (changed to ESPN, Inc. in 1984) launched in 1.4 million homes at 7 p.m. ET on September 7, 1979. A short introduction was followed by the opening show, SportsCenter hosted by Lee Leonard and George Grande.
From Day One to today, more than four decades later, SportsCenter – the program that has aired the most episodes in television history – has been the backbone of the network and its signature show, redefining the genre of sports news on television.
Impact at ESPN
As ESPN’s founder and first president, Rasmussen shaped the early successes of the company and laid the foundation for its strong future. His passion for sports and love of innovation through both technology and creative programming remain ESPN hallmarks. In July 1979, Rasmussen was named ESPN Chairman, succeeded as President by Chet Simmons, formerly President of NBC Sports. In addition to SportsCenter, under Rasmussen’s leadership the network introduced around the clock sports programming and groundbreaking coverage of the early rounds of the NCAA men’s basketball tournament in the spring of 1980, which drew national attention for the fledgling outfit.
“Bill was our George Washington and a good friend,” said veteran anchor Chris Berman, who joined ESPN three weeks after the original network launch in 1979. “He was such a grateful person and every sports fan can be grateful for Bill. He wasn’t a glass half-full guy; his glass was always overflowing with optimism. He greeted everyone with a smile and we can all smile knowing Bill’s legacy.”
In 1994, Rasmussen made Sports Illustrated’s “Forty for the Ages,” a listing of sports figures who significantly altered and elevated the world of sports in the second half of the 20th century. Also that year, USA Today called him “The Father of Sports Television.”

From its humble beginnings in Bristol, Conn. – about 80 employees at launch in one, unfinished building on less than an acre (bought sight unseen) – ESPN has grown to comprise more than 5,900 employees around the world, eight U.S. television networks plus the sports programming on ABC, the leading sports app and direct-to-consumer service for sports, ESPN Audio, leading social and digital platforms, and more, including endeavors on virtually every continent.
Before ESPN
Born October 15, 1932, in Chicago and raised in nearby Columbus Manor, Ill., Rasmussen was an avid athlete as a youth, earning an invitation to a minor league affiliate of the Detroit Tigers. He chose, however, to attend DePauw University in Greencastle, Ind., where he received a bachelor’s degree in economics. After graduation in 1954, he served in the United States Air Force and later earned an MBA from Rutgers University.
After a successful entrepreneurial venture in the advertising business, Rasmussen’s career in the media began at WTTT radio in Amherst, Mass., in 1962. In 1965, he moved to WWLP-TV, Springfield, Mass., where he spent eight years as sports director and two years as news director. During these years, he handled numerous football, basketball, baseball and hockey play-by-play assignments on both radio and television. In 1974, he joined the New England Whalers of the World Hockey Association as communications director, serving until the conclusion of the 1977-78 season.
After ESPN
Rasmussen left an active role at ESPN in October 1980. He then served as a consultant to sports rights holders and media companies. He also remained active with his own start-up ventures in sports, often involving media.
After publicly disclosing his Parkinson’s Disease diagnosis in 2019, Rasmussen became an ambassador for Parkinson’s patients through both the American Parkinson Disease Association and The Michael J. Fox Foundation for Parkinson’s Research.
Rasmussen was active in numerous charity events, including nine years with the acclaimed Winged Foot Scholarship Program, and five years with a Senior PGA TOUR event, and was a frequent participant in celebrity charity golf events throughout the country.

(Photo by Nick Caito / ESPN Images)
Among his other honors and awards, Rasmussen was named to the Sports Broadcasting Hall of Fame in 2025, Rutgers University’s Wall of Fame in 2002, DePauw University’s Media Wall of Fame in 2012, and in 2001 received the prestigious Order of Achievement from Lambda Chi Alpha. In 1997, he was inducted into the Connecticut Sports Museum and Hall of Fame. Rasmussen was named to The Sports 100, honoring the 100 most important people in American Sports History.
In 2019, Rasmussen had the honor of throwing the ceremonial first pitch with ESPN Chairman Jimmy Pitaro making the catch at a New York Yankees-Boston Red Sox Major League Baseball game at Fenway Park in celebration of ESPN’s 40-year anniversary.
Rasmussen was a popular guest on the speaking circuit relating his entrepreneurial adventures and was a frequent guest on business and sports radio talk shows to discuss his entrepreneurial career. Rasmussen also authored two books, “Sports Junkies Rejoice! The Birth of ESPN” and most recently “ESPN: One Giant Leap for Fankind,” published in 2023. Rasmussen collaborated with Tenero Productions for a documentary and book project “Sports Heaven: The Birth of ESPN” on his life and the launch of ESPN that was released in 2026.
In lieu of flowers, donations may be made to https://www.apdaparkinson.org.
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Dave Marsh, Bruce Springsteen biographer and music critic, dies at 76
Dave Marsh, a longtime music critic who wrote several influential books about Bruce Springsteen, including the early biography “Born to Run,” has died. He was 76.
Marsh died Friday in Connecticut, his friend Jeffrey St. Clair, a co-editor of the online magazine Counterpunch, told The Associated Press. St. Clair said Marsh had been suffering from a degenerative brain disease for several years. Jim Rotolo, the SiriusXM radio host, announced Marsh’s death on his social media accounts.
Springsteen paid tribute to Marsh in an Instagram post, writing that the loss had left the band “heartbroken.”
“My great friend Dave, with his straight out of Detroit attitude, was a true Rock ‘n’ Roll lifer. He was soulful, intelligent, heartfelt, opinionated, bruising and often fantastically argumentative,” Springsteen wrote. “He deeply believed in what I was trying to accomplish and his lifetime of support meant the world to me.”
Steven Van Zandt also wrote a remembrance on Instagram, writing “he was fearless, relentless, arrogant, everything you’d want in a RocknRoll troublemaker. And by the way, a tremendous writer.”
Marsh was an early champion of Springsteen, writing about him for Creem magazine and penning his first Rolling Stone cover story in 1978. In 1979 his biography “Born to Run: The Bruce Springsteen Story” was released and became a best seller. He followed it in 1986 with “Glory Days: Bruce Springsteen in the 1980s.” Legend has it that he was the one responsible for getting Jon Landau, Springsteen’s longtime manager and record producer, to his first Springsteen concert.
Born in Pontiac, Michigan, in 1950, Marsh dropped out of Detroit’s Wayne State University in 1969 to write for the new rock magazine “Creem,” where Lester Bangs was among his friends and mentors. Springsteen wasn’t Marsh’s only subject, but he was always close by. In 1979, he married Barbara Carr, who would go on to be Springsteen’s co-manager alongside Landau for decades. The rocker even attended their wedding.
He and Carr also devoted much effort to The Kristen Ann Carr Fund, a charity that they started named after their daughter who died from sarcoma at age 21 in 1993. Later that year, Springsteen hosted a benefit concert at Madison Square Garden, where they raised $1.5 million.
Marsh also wrote “The Heart of Rock & Soul: The 1001 Greatest Singles Ever Made,” a biography of The Who, and a book about The Kingsmen hit “Louie Louie.” In recent years he was a frequent co-host and guest on the E Street Nation SiriusXM channel.
___
National Writer Hillel Italie contributed from New York.
Trending
Oprah distances herself from Dr Phil and Dr Oz over their politics
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Talk show legend Oprah Winfrey distanced herself from Dr. Phil McGraw and Dr. Mehmet Oz, two stars she helped turn into national media personalities who have since become associated with conservative politics.
Winfrey spoke to Emmy Magazine about her career and was asked how she felt about McGraw and Oz now.
“People criticize me for Dr. Phil and Dr. Oz, because of their politics or their views,” she said, recalling that during a lengthy legal battle in the late ‘90s, “Dr. Phil, he was so practical, so down-to-earth, so real. And he would ride in the car with me every morning on the way to trial, where I’m literally sitting on trial for six weeks.”
McGraw and Oz have become political figures in recent years. Oz, endorsed by President Donald Trump, ran for U.S. Senate in Pennsylvania in 2022 before being defeated by Sen. John Fetterman. While McGraw has not endorsed either party, he appeared at Trump’s Madison Square Garden campaign rally in October 2024, and accompanied ICE personnel during Chicago immigration raids alongside Trump border czar Tom Homan.
Oz was nominated by Trump and approved by the Senate to become Administrator for the Centers for Medicare & Medicaid Services in 2025 as the president returned to office.

Oprah Winfrey takes the stage on Day 3 of the Democratic National Convention (DNC) at the United Center, in Chicago, Illinois, U.S., August 21, 2024. (Mike Segar/Reuters)
“I felt that he was so instrumental in helping me. I thought, ‘Oh, you could help a lot of people. You should come on my show,’” she added.
For Dr. Oz, she recalled, “He explained practical things like colon cancer and bowel movements. I thought he had the language for explaining medical things in a way that was helpful to me. I thought it would be helpful to many other people. And that is how they ended up on the show.”
“Everybody has their own path in life, and it has not one thing to do with me, and I don’t have one thing to do with them,” she concluded. “At the time, the reason and intention behind me giving them their breaks was I thought they had valuable information to share that had been meaningful to me.”
ALEXANDRIA OCASIO-CORTEZ SHRUGS OFF PAST ‘DEFUND THE POLICE’ COMMENTS, JOKING ‘WOKE 1 WAS CRAZY’

While Dr. Phil McGraw has declined to reveal who he voted for in 2024, he has become a prominent commentator associated with conservative politics.
The managing editor of Media Research Center’s NewsBusters, Curtis Houck, told Fox News Digital that Winfrey appears to have no qualms about engaging in politics herself.
“Oprah certainly doesn’t have a problem with being friends with progressives or anyone willing to take on Trump,” he said.
“Oprah wants us to feel bad for woke Prince Harry and Meghan or the woman in the Coldplay kiss cam. She herself is stuck on Woke 1,” Houck added, referring to the term Rep. Alexandria Ocasio-Cortez used in an attempt to shrug off far-left identity politics as a thing of the past.
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Administrator for the Centers for Medicare & Medicaid Services Dr. Mehmet Oz speaks ahead of U.S. Vice President JD Vance at the 128th Air Refueling Wing Hangar on July 8, 2026, in Milwaukee, Wisconsin. (Scott Olson/Getty Images)
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“Oprah and her friend/CBS ‘Journalist’ Gayle King can continue promoting whatever causes they want or pal around with the Obamas, but they shouldn’t be seen as non-partisan by any stretch. While I’m sure they’re incredibly grateful to her, Dr. Phil and Dr. Oz should be allowed to have their own opinions and not be framed as the exclusive partisans,” he concluded.
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